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The American Liver Foundation
The national, voluntary non-profit health agency dedicated to preventing, treating and curing hepatitis and all liver diseases through research, education and support groups. http://www.liverfoundation.org/

American Medical Association (AMA)
Physicians dedicated to the health of America. http://206.189.190.101

Center for Disease Control (CDC)
Viral Hepatitis Section http://www.cdc.gov/ncidod/diseases/hepatitis/index.htm

Clinical Trials.gov
A service of the  NIH providing current information about clinical research studies. http://clinicaltrials.gov

Drug Interactions
http://www.drugdigest.org/DD/Interaction/ChooseDrugs

Euroliver Foundation
The Euroliver Foundation is a Public nonprofit charity association under Belgian law.
http://www.euroliver.org/

Hepatitis.org and Liver.org
An initiative of the Euroliver Foundation
http://www.hepatitis.org/ or
www.liver.org

Hepatitis Foundation International
HFI seeks to increase awareness of the worldwide problem of viral hepatitis and to educate the public and healthcare providers about its prevention, diagnosis, and treatment. http://www.hepfi.org

Hepatitis Magazine Online
Hepatitis Magazine Online is the only national magazine dedicated to patients of hepatitis B and C. The magazine is a bimonthly resource guide to assist hepatitis patients and their families in taking control of their health care by providing current, comprehensive information in one source. http://www.hepatitismag.com

Hepatitis Medical Glossary http://www.epidemic.org/glossary.html

 Hep C Compensation
Please join our fight to have the United States Government, blood banks and companies that manufacture blood products like Factor VIII acknowledge their role in the Hepatitis C epidemic and demand that they not only be held accountable but help compensate the victims or their survivors. http://www.hepcompensation.com/

HCV Network
Our vision is to keep the Hepatitis C community informed with the latest information available. http://gmwebs.net/schepc/

Johns Hopkins Infectious Diseases
Viral Hepatitis Section http://hopkins-id.edu/diseases/hepatitis/index_hep.html

Medical Search Engine
Online Medical Resources Searches http://www.freeality.com/medicalt.htm

MedTerms
Medical terminology dictionary http://www.medterms.com


Pathology Education Site
A free site designed by a pathologist, for pathology education http://www.pathmax.com

PDR.net
Drug information for consumers and a medical dictionary http://consumer.pdr.net/consumer/

 

INTERPRETING LAB TESTS

Lab Tests Online
http://www.labtestsonline.org/

4LIVER
What Does It Mean? What Is Normal in Bloodtests?
Compiled by: Candi/LiverInfo1@aol.com
http://home3.inet.tele.dk/omni/alttest.htm

Liver Lab Tests
http://hepatitis-central.com/hcv/labs/toc.html

HCV Viral Load Chart
http://hepatitis-central.com/hcv/hepatitis/loadchart.html

HCV Genotype Info
http://hepatitis-central.com/hcv/genotype/toc.html

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HEPATITIS C SITES

Aids-HepatitisC-Org
This site is dedicated to the accumulation of knowledge about HIV/AIDS and Hepatitis C, and the support of advocacy actions to produce change. http://aids-hepatitisc.org/

American Liver Society
The American Liver Society was founded by caregivers and patients to be a resource for other caregivers, patients, professionals and those that may become affected by a liver disease by providing them with useful information about the liver. http://www.liversociety.org

Artists Against Hepatitis
This site was founded by former Beach Boy,  David Marks and his wife, Carrieann. The goal is to unite those in the entertainment industry to help publicize the severity of this illness. http://www.artistsagainsthepatitis.com/

The Combo Survival Guide From A-Z
Written by three women who lived it. Valuable information, empathy and humor. http://www.hepcesn.net/comboguide.htm

Frontline Hepatitis Awareness
Bringing together Hepatitis Support Groups, patients and organizations to work towards the common goal of education and support in any area of Hepatitis C or HCV co-infection to include HBV and HIV.
http://www.frontline-hepatitis-awareness.com/

H.E.A.L.S of North Florida
This site is for Hepatitis Education, Awareness and Liver Support!
http://www.healsofnfl.bravehost.com/

H.E.A.L.S of North Georgia
Hepatitis Education, Awareness, and Liver Support
http://www.healsofnga.org/

HCV Global
The HCV Global Foundation is a grass roots, non profit, tax exempt organization dedicated to providing education and prevention programs for the millions of people worldwide who suffer with Hepatitis C. http://www.hcvglobal.org/

Hepatitis C Resources and Information
HCVINFO.COM is an HCV Informational web site that includes great web links to helpful web sites about Hepatitis C and also has lots of encouraging information for people who suffer with Hepatitis C and their families and friends as well. http://www.hcvinfo.com

HCV Support Project
The mission of the Hepatitis Support Project is to offer support to those who are affected by the hepatitis C Virus. http://www.hcvadvocate.org/

Hepatitis Central
Search over 2,000 pages about Hepatitis C. 
http://hepatitis-central.com/

HepC Connection
Hepatitis C network and support system
http://www.hepc-connection.org/

Hep C Palace
We are a Hepatitis-C support group supportive of conventional and alternative treatment.
http://heppalace.net/

HEPCSUPPORTGROUP
http://groups.msn.com/HEPCSUPPORTGROUP

Hepatitis C Association
The focus of the Hepatitis C Association is to educate the public, both medical professionals and private citizens, about hepatitis C virus.
http://hepcassoc.org/index.html

Hepatitis C Education and Support Network
The Hepatitis C Education and Support Network, Inc., focuses on educating the public, promoting awareness and supporting patients living with hepatitis C virus. They offer assistance to organizations and individuals involved in hepatitis C research, education and support. http://www.hepcesn.net

Hepatitiscandme.com, Living With Hepatitis C, the Ultimate Challenge
Join Michelle in her fight for the rights of all HepC victims. Excellent info and help on dealing with the political aspects of fighting our battle.
http://www.hepatitiscandme.com

The Hepatitis Encyclopedia of Links
This is a database site on Hepatitis_C,B,HIV and Addiction/ Recovery. The site contains around 700 primary links and close to 2,000 secondary links to sites dealing with Hepatitis and other liver conditions. 7 search engines are provided for specific inquiries and a good deal of backround information is presented in "layman's" terms.
http://www.geocities.com/xxdennisco2/Hepopedia.htm

Hep C Compensation
A campaign for justice and compensation from the companies and government agencies responsible for spreading this terminal disease through deliberate distribution of contaminated blood products.
http://www.hepcompensation.com/

HepC Hope, Inc. (Texas)
A nonprofit organization promoting awareness and providing support and education. http://home.flash.net/~hepchope/hep-c-hope.htm

Hepatitis C Outreach Project
Professional education programs,  patient education material,  public awareness materials and much more.
http:// www.hcop.org

Hep C Web Warriors E-group
Web Warriors scour the web for stellar Hep C sites and share their discoveries. http://www.egroups.com/group/HepCWebWarriors

Hepatitis Education Project (Seattle)
The Hepatitis Education Project is a non-profit corporation chartered in the state of Washington to provide educational materials and support groups for hepatitis patients and their families.
http://www.scn.org/health/hepatitis/

LOLA (Spanish speaking/ Latino populations)
http://www.lola-national.org/

M.K. Andrews
M K Andrew's honest and sometimes wacky account of his experience with Hepatitis C
http://www.mkandrew.com/

NATAP- National Aids Treatment Advocacy Project
Excellent source of info on HepC and HCV and HIV co-infection.
http://www.natap.org/

Objective Medicine. Com
Excellent collection of resources and links.
http://objectivemedicine.com/index.htm

PAM's Hep C Links Page
A compilation of hundreds of links to HepC sites everywhere!
http://www.diac.com/~ekwall2/hepchat/links.shtml

Siren To Wail
Siren to Wail provides peer counseling and deploys educational material to those newly diagnosed and/or living with Hepatitis C. STW offers social services for those seeking help filling out medical forms, applying for financial aid and in need of clinical placement. We provide support groups, free/low cost testing, client counseling and referrals to doctors at no cost to our clients. In addition Siren To Wail produces public service announcements "PSAs" for radio and television. http://www.sirentowail.org

Smilin' Sandi's Crusade Against Hepatitis C
Excellent source of information and support. Hepper contacts worldwide. HCV support groups and much more. http://www.creativeintensity.com/smking/

Witchita, Kansas based online support group
Local info and more.
http://members.aol.com/icthepc

The Land of Waz and Hepatitis C
Artistically pleasing site that is packed with information on HepC and other chronic illnesses. HepC cyberwall and a lot of good links.
http://www.wizofwaz.com/HepC.html

The Chronic Illness House Wiz of Waz Palace!
A virtual community with lots of original artwork and chat avatars
Get Free Palace Download First!  Then click here to visit the Palace Palace LINK TO Chronic Illness House

 

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LINKS OF SPECIAL INTEREST TO VETERANS

LeighAnn's Hepatitis C Home
Excellent site packed with info geared towards veterans but useful to all with HepC. http://www.geocities.com/TheTropics/Shores/4259/

VA Hepatitis Page
Providing information and services concerning hepatitis C tailored to the special needs of veterans and their medical care providers.
http://www.va.gov/hepatitisc/

Veterans Benefits Administration
U S Department of Veterans Affairs
http://www.vba.va.gov/

Veterans Helping Veterans
A comprehensive guide for Veterans infected with Hepatitis B and C.
http://www.geocities.com/hepvet/index.html

Hep C Alert Board
Information links for military personnel with HCV
http://www.hep-c-alert.org/vethome.html

Veterans Helping Veterans with Hepatitis B & Hepatitis C
Captain Kevin D. Donnelly, USAR
Information and message board
http://www.geocities.com/Pentagon/Bunker/2704

Discussion Group List for US Veterans with HCV
Head of group is Jim Nevels a veteran with HCV
Send a blank Email message to
VWH-subscribe@onelist.com

Discussion Group List for veterans issues
Head of group is Col. Dan
Send a blank Email message to
VeteranIssues-subscribe@onelist.com

The Gulf War Veterans Resource Links
http://www.globaldialog.com/~KornKven

Vietnam Veterans Organizations & Support Groups
Various groups in US and lists for other countries
http://grunt.space.swri.edu/vetorgs.htm

Source Book Information for US Veterans
Vikki Shaw-Hepatitis Central
http://hepatitis-central.com/hcv/vets/books.html

Combo Therapy Information for US Vets Through the Dept. of Veterans Affairs
http://www.hepplace.com/vacombo.html

Disabled US Veteran Links
Huge list of links
http://www.manasota.com/vets.htm

Military Woman Webpage
Message board, health issues, more
http://www.militarywoman.org/homepage.htm

Stars and Stripes Resource Page
Lots of links
http://www.stripes.com/LINKS.html

National Veterans Legal Services Program
Independent, non profit, charitable organization
1-800-6885.VET
http://www.nvlsp.org

Programs of the Department of Veterans Affairs
US Government links website
http://www.vagov/programs.htm

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SITES FOR CHILDREN WITH HEPC

C.L.A.S.S Children's Liver Association for Support Services
An all-volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation.
http://www.classkids.org/

Children's Liver Alliance
aka:Biliary Artresia and Liver Transplant Network Inc.
Empowering the hearts and minds of children with liver disease, their families, and the medical professionals who care for them. http://www.livertx.org/

The Children's Liver Disease Foundation
Caring for young lives, supporting families, education and research.
http://www.childliverdisease.org/

COTA - Children's Organ Transplant Association
COTA's primary mission is to ensure that no U.S. citizen is ever denied a life-saving transplant or access to a transplant waiting list, due solely to the lack of funds. Our secondary focus is to promote organ donations and to provide public education on all aspects of the organ donation process.
http://www.cota.org/

HCV and children links
A collection of studies and articles dealing with pediatric hepatitis C infection and treatment.
http://www.hepatitis-c.de/child.htm

PKIDS, Parents of Kids with Infectious Diseases
Great newsletter and resources.
http://www.pkids.org

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TRANSPLANT RESOURCES

Absolute Authority on Transplant Pharmacology
Your hub site for all the best stuff on the subject of Transplant Pharmacology. Get the news. Meet people with common interests. Locate Authorities. Access powerful tools.
http://www.absoluteauthority.com/Transplant_Pharmacology/

Coalition On Donation
Non-profit alliance of national organizations and local coalitions across the US, dedicated to educating the public about organ and tissue donation.
http://www.shareyourlife.org/

Good Life Resources
A free mail order pharmacy service founded by a transplant recipient for transplant recipients http://www.goodliferesources.com/

Lifelines
Transplant Recipients International Organization, Inc.
http://www.trioweb.org/lifelines/00_may_jun/page2_c.html

Liver Transplant Support
http://forums.delphiforums.com/livertransplant/start

National Foundation for Transplants
Patient services, fund-raising and emergency grants.
http://www.transplants.org/

The Organ Transplant Web Ring
A transplant/donation web ring made up of great personal and commercial web pages with resources, stories, and information http://www.geocities.com/HotSprings/8374/

Transplant buddies
Sharing feelings and thoughts about the transplant process.
http://www.transplantbuddies.com/

TransWeb
All about transplantation and donation.
http://www.transweb.org/default.htm

Transplant World
A virtual community to enable the citizens of Transplant World to share their triumphs.
http://www.transplantworld.org/

UNOS - United Network for Organ Sharing
This site is dedicated to the patients waiting and the donor families who have shared the gift of life. http://www.unos.org/frame_Default.asp

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MISCELLANEOUS Helpful Links

Financial Help With Prescription Medications
Their function, in cooperation with the physician, is to assist patients who may qualify to enroll in one or more of the many patient assistance programs now available. These programs provide prescription medicine free-of-charge to individuals in need, regardless of age, if they meet the sponsor's criteria. 
http://www.themedicineprogram.com/info.html

GAMMAGARD® IVIG CLASS ACTION SETTLEMENT
For anyone needing Info on the class action suit from getting HCV from a blood transfusion.
http:// www.hcv-claims.com

Heppers in  the United States:(state by state)
http://www.hepchotel.com/live/unitedsts.html

Worldwide: http://www.hepchotel.com/live/index.html

HepC Singles Dating - Free Membership!
http://www.hepcmatch.com/

International Hep-C Quilts
The Hep-C quilts are made up of patches submitted by people from all over the world with Hepatitis C. The quilts are available for display at various public functions.
http://home.flash.net/~stern/quilt/

Online Pot
Your guide to Medical Marijuana, Medical Marijuana Cultivation, & Medical Marijuana Activism.
http://www.geocities.com/onlinepot/

Opiate Addiction/HCV/Methadone Info and Support

P.A.I.N. Pain Aid Information Network
People and organizations that provide help for us, financially and medically.
http://www.geocities.com/paininfo.geo/helps.html

Support Systems Drug Rehabilitation
Drug rehabilitation, drug rehab center, substance abuse and alcohol
treatment centers in Northern California, offering numerous drug and
alcohol rehabilitation programs for addiction and alcoholism.
http://www.drug-rehabilitation.com

SEVERE
Social Security Disability Benefits Law Information and Resources http://www.concentric.net/~severe1/index.html

WIZOFWAZ and CFS/FM
Chronic Fatigue Syndroms (CFS) and Fibromyalgia (FMS) links and info on fun to view webpages. http://www.asan.com/users/wazzie/wizpage.htm

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Major Drug Company Numbers for assistance.

Abbot Laboratories   800-688-9188
Amgen   800-272-9376
Aventis   800-221-4025
Bayer   800-998-9180
Biogen   800-456-2255
Boehringer Ingelheim Pharmaceuticals, Inc.   800-556-8317
Bristol-Myers Squibb Company   800-736-0003
Dupont Pharma   800-474-2762
Ciba Pharmaceuticals   800-257-3273
Ely Lilly and Company   800-545-6962
Glaxo Wellcome, Inc.   800-722-9294
Hoechst Marion Roussel, Inc.   800-221-4025
Immunex   800-436-2735
Jannsen Pharmaceutical   800-544-2987
Knoll Pharmaceutical Company   800-524-2474
Lederle Laboratories   703-706-5933
Merk   800-994-2111
Novartis Pharmaceuticals   800-257-3273
Organon   800-241-8812
Ortho-McNeil   800-797-7737
Parke Davis   800-223-0432
Pfizer   800-646-4455
Pharmacia and Upjohn   800-366-5570
Roche Laboratories, Inc.   800-285-4484
Roxane Labs   800-285-4484
Schering Laboratories/ Key Pharmaceuticals   800-656-9485
Scios Inc.   800-633-0711
SciClone Pharmaceuticals  800-724-2566
(SciClone Pharmaceuticals, Inc. is a biopharmaceutical company and its
lead product ZADAXIN® is in phase 3 hepatitis C clinical trials in the
U.S.)
 Searle   800-542-2526
SmithKline Beecham Pharmaceuticals   800-546-0420
Solvay Pharmaceuticals, Inc.   800-788-9277
Wyeth-Ayerst Laboratories   800-568-9938
Zeneca Pharmaceuticals   800-424-3727

 

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    Page last updated: September 22, 2004


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