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The American
Liver Foundation
The national, voluntary non-profit health agency dedicated to preventing,
treating and curing hepatitis and all liver diseases through research,
education and support groups. http://www.liverfoundation.org/
American
Medical Association (AMA)
Physicians dedicated to the health of America. http://206.189.190.101
Center for
Disease Control (CDC)
Viral Hepatitis Section http://www.cdc.gov/ncidod/diseases/hepatitis/index.htm
Clinical
Trials.gov
A service of the NIH providing current information about clinical
research studies. http://clinicaltrials.gov
Drug Interactions
http://www.drugdigest.org/DD/Interaction/ChooseDrugs
Euroliver
Foundation
The Euroliver Foundation is a Public nonprofit charity association
under Belgian law.
http://www.euroliver.org/
Hepatitis.org
and Liver.org
An initiative of the Euroliver Foundation
http://www.hepatitis.org/
or
www.liver.org
Hepatitis
Foundation International
HFI seeks to increase awareness of the worldwide problem of viral
hepatitis and to educate the public and healthcare providers about
its prevention, diagnosis, and treatment. http://www.hepfi.org
Hepatitis
Magazine Online
Hepatitis Magazine Online is the only national magazine dedicated
to patients of hepatitis B and C. The magazine is a bimonthly resource
guide to assist hepatitis patients and their families in taking
control of their health care by providing current, comprehensive
information in one source. http://www.hepatitismag.com
Hepatitis
Medical Glossary http://www.epidemic.org/glossary.html
Hep C Compensation
Please join our fight
to have the United States Government, blood banks and companies
that manufacture blood products like Factor VIII acknowledge their
role in the Hepatitis C epidemic and demand that they not only be
held accountable but help compensate the victims or their survivors.
http://www.hepcompensation.com/
HCV Network
Our vision is to keep the Hepatitis C community informed with
the latest information available. http://gmwebs.net/schepc/
Johns Hopkins
Infectious Diseases
Viral Hepatitis Section http://hopkins-id.edu/diseases/hepatitis/index_hep.html
Medical Search
Engine
Online Medical Resources Searches http://www.freeality.com/medicalt.htm
MedTerms
Medical
terminology dictionary http://www.medterms.com
Pathology
Education Site
A free site designed by a pathologist, for pathology education http://www.pathmax.com
PDR.net
Drug information for consumers and a medical dictionary http://consumer.pdr.net/consumer/
INTERPRETING
LAB TESTS
Lab Tests
Online
http://www.labtestsonline.org/
4LIVER
What Does It Mean? What Is Normal in Bloodtests?
Compiled by: Candi/LiverInfo1@aol.com
http://home3.inet.tele.dk/omni/alttest.htm
Liver Lab Tests
http://hepatitis-central.com/hcv/labs/toc.html
HCV Viral Load Chart
http://hepatitis-central.com/hcv/hepatitis/loadchart.html
HCV Genotype Info
http://hepatitis-central.com/hcv/genotype/toc.html
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Aids-HepatitisC-Org
This site is dedicated to the accumulation of knowledge about HIV/AIDS
and Hepatitis C, and the support of advocacy actions to produce
change. http://aids-hepatitisc.org/
American Liver Society
The American Liver Society was founded by caregivers and patients
to be a resource for other caregivers, patients, professionals and
those that may become affected by a liver disease by providing them
with useful information about the liver. http://www.liversociety.org
Artists Against
Hepatitis
This site was founded by former Beach Boy, David Marks and
his wife, Carrieann. The goal is to unite those in the entertainment
industry to help publicize the severity of this illness. http://www.artistsagainsthepatitis.com/
The Combo
Survival Guide From A-Z
Written by three women who lived it. Valuable information, empathy
and humor. http://www.hepcesn.net/comboguide.htm
Frontline
Hepatitis Awareness
Bringing together Hepatitis Support Groups, patients and organizations
to work towards the common goal of education and support in any
area of Hepatitis C or HCV co-infection to include HBV and HIV.
http://www.frontline-hepatitis-awareness.com/
H.E.A.L.S
of North Florida
This site is for Hepatitis
Education, Awareness and Liver Support!
http://www.healsofnfl.bravehost.com/
H.E.A.L.S of North
Georgia
Hepatitis Education, Awareness, and Liver Support
http://www.healsofnga.org/
HCV Global
The HCV Global Foundation is a grass roots, non profit, tax exempt
organization dedicated to providing education and prevention programs
for the millions of people worldwide who suffer with Hepatitis C.
http://www.hcvglobal.org/
Hepatitis
C Resources and Information
HCVINFO.COM is an HCV Informational web site that includes great
web links to helpful web sites about Hepatitis C and also has lots
of encouraging information for people who suffer with Hepatitis
C and their families and friends as well. http://www.hcvinfo.com
HCV Support
Project
The mission of the Hepatitis Support Project is to offer support
to those who are affected by the hepatitis C Virus. http://www.hcvadvocate.org/
Hepatitis
Central
Search over 2,000 pages about Hepatitis C.
http://hepatitis-central.com/
HepC Connection
Hepatitis C network and support system
http://www.hepc-connection.org/
Hep C Palace
We are a Hepatitis-C support group supportive of conventional and
alternative treatment.
http://heppalace.net/
HEPCSUPPORTGROUP
http://groups.msn.com/HEPCSUPPORTGROUP
Hepatitis
C Association
The focus of the Hepatitis C Association is to educate the public,
both medical professionals and private citizens, about hepatitis
C virus.
http://hepcassoc.org/index.html
Hepatitis
C Education and Support Network
The Hepatitis C Education and Support Network, Inc., focuses on
educating the public, promoting awareness and supporting patients
living with hepatitis C virus. They offer assistance to organizations
and individuals involved in hepatitis C research, education and
support. http://www.hepcesn.net
Hepatitiscandme.com,
Living With Hepatitis C, the Ultimate Challenge
Join Michelle in her fight for the rights of all HepC victims. Excellent
info and help on dealing with the political aspects of fighting
our battle.
http://www.hepatitiscandme.com
The Hepatitis
Encyclopedia of Links
This is a database
site on Hepatitis_C,B,HIV and Addiction/ Recovery. The site contains
around 700 primary links and close to 2,000 secondary links to sites
dealing with Hepatitis and other liver conditions. 7 search engines
are provided for specific inquiries and a good deal of backround
information is presented in "layman's" terms.
http://www.geocities.com/xxdennisco2/Hepopedia.htm
Hep C Compensation
A campaign for justice
and compensation from the companies and government agencies responsible
for spreading this terminal disease through deliberate distribution
of contaminated blood products.
http://www.hepcompensation.com/
HepC Hope,
Inc. (Texas)
A nonprofit organization promoting awareness and providing support
and education. http://home.flash.net/~hepchope/hep-c-hope.htm
Hepatitis
C Outreach Project
Professional education programs, patient education material,
public awareness materials and much more.
http:// www.hcop.org
Hep C Web
Warriors E-group
Web Warriors scour the web for stellar Hep C sites and share their
discoveries. http://www.egroups.com/group/HepCWebWarriors
Hepatitis
Education Project (Seattle)
The Hepatitis Education Project is a non-profit corporation chartered
in the state of Washington to provide educational materials and
support groups for hepatitis patients and their families.
http://www.scn.org/health/hepatitis/
LOLA
(Spanish speaking/ Latino populations)
http://www.lola-national.org/
M.K. Andrews
M K Andrew's honest and sometimes wacky account of his experience
with Hepatitis C
http://www.mkandrew.com/
NATAP- National
Aids Treatment Advocacy Project
Excellent source of info on HepC and HCV and HIV co-infection.
http://www.natap.org/
Objective
Medicine. Com
Excellent collection of resources and links.
http://objectivemedicine.com/index.htm
PAM's Hep C Links
Page
A compilation of hundreds of links to HepC sites everywhere!
http://www.diac.com/~ekwall2/hepchat/links.shtml
Siren To
Wail
Siren to Wail provides peer counseling and deploys educational
material to those newly diagnosed and/or living with Hepatitis C.
STW offers social services for those seeking help filling out medical
forms, applying for financial aid and in need of clinical placement.
We provide support groups, free/low cost testing, client counseling
and referrals to doctors at no cost to our clients. In addition
Siren To Wail produces public service announcements "PSAs"
for radio and television. http://www.sirentowail.org
Smilin'
Sandi's Crusade Against Hepatitis C
Excellent source of information and support. Hepper contacts worldwide.
HCV support groups and much more. http://www.creativeintensity.com/smking/
Witchita,
Kansas based online support group
Local info and more.
http://members.aol.com/icthepc
The Land
of Waz and Hepatitis C
Artistically pleasing site that is packed with information on HepC
and other chronic illnesses. HepC cyberwall and a lot of good links.
http://www.wizofwaz.com/HepC.html
The Chronic
Illness House Wiz of Waz Palace!
A virtual community with lots of original artwork and chat avatars
Get Free Palace
Download First!
Then click
here to visit the Palace
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| LINKS
OF SPECIAL INTEREST TO VETERANS |
LeighAnn's
Hepatitis C Home
Excellent site packed with info geared towards veterans but useful
to all with HepC. http://www.geocities.com/TheTropics/Shores/4259/
VA Hepatitis
Page
Providing information and services concerning hepatitis C tailored
to the special needs of veterans and their medical care providers.
http://www.va.gov/hepatitisc/
Veterans
Benefits Administration
U S Department of Veterans Affairs
http://www.vba.va.gov/
Veterans
Helping Veterans
A comprehensive guide for Veterans infected with Hepatitis B and
C.
http://www.geocities.com/hepvet/index.html
Hep C Alert Board
Information links for
military personnel with HCV
http://www.hep-c-alert.org/vethome.html
Veterans Helping Veterans
with Hepatitis B & Hepatitis C
Captain Kevin D. Donnelly,
USAR
Information and message board
http://www.geocities.com/Pentagon/Bunker/2704
Discussion Group List
for US Veterans with HCV
Head of group is Jim Nevels a veteran with HCV
Send a blank Email message to
VWH-subscribe@onelist.com
Discussion Group List
for veterans issues
Head of group is Col. Dan
Send a blank Email message to
VeteranIssues-subscribe@onelist.com
The Gulf War Veterans
Resource Links
http://www.globaldialog.com/~KornKven
Vietnam Veterans Organizations
& Support Groups
Various groups in US and lists for other countries
http://grunt.space.swri.edu/vetorgs.htm
Source Book Information
for US Veterans
Vikki Shaw-Hepatitis Central
http://hepatitis-central.com/hcv/vets/books.html
Combo Therapy Information
for US Vets Through the Dept. of Veterans Affairs
http://www.hepplace.com/vacombo.html
Disabled US Veteran
Links
Huge list of links
http://www.manasota.com/vets.htm
Military Woman Webpage
Message board, health issues, more
http://www.militarywoman.org/homepage.htm
Stars and Stripes
Resource Page
Lots of links
http://www.stripes.com/LINKS.html
National Veterans
Legal Services Program
Independent, non profit, charitable organization
1-800-6885.VET
http://www.nvlsp.org
Programs of the Department
of Veterans Affairs
US Government links website
http://www.vagov/programs.htm
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| SITES
FOR CHILDREN WITH HEPC |
C.L.A.S.S
Children's Liver Association for Support Services
An all-volunteer, nonprofit organization dedicated to serving the
emotional, educational, and financial needs of families coping with
childhood liver disease and transplantation.
http://www.classkids.org/
Children's
Liver Alliance
aka:Biliary Artresia and Liver Transplant Network Inc.
Empowering the hearts and minds of children with liver disease,
their families, and the medical professionals who care for them.
http://www.livertx.org/
The Children's
Liver Disease Foundation
Caring for young lives, supporting families, education and research.
http://www.childliverdisease.org/
COTA - Children's
Organ Transplant Association
COTA's primary mission is to ensure that no U.S. citizen is ever
denied a life-saving transplant or access to a transplant waiting
list, due solely to the lack of funds. Our secondary focus is to
promote organ donations and to provide public education on all aspects
of the organ donation process.
http://www.cota.org/
HCV and
children links
A collection of studies and articles dealing with pediatric hepatitis
C infection and treatment.
http://www.hepatitis-c.de/child.htm
PKIDS, Parents
of Kids with Infectious Diseases
Great newsletter and resources.
http://www.pkids.org
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Absolute
Authority on Transplant Pharmacology
Your hub site for all the best stuff on the subject of Transplant
Pharmacology. Get the news. Meet people with common interests. Locate
Authorities. Access powerful tools.
http://www.absoluteauthority.com/Transplant_Pharmacology/
Coalition
On Donation
Non-profit alliance of national organizations and local coalitions
across the US, dedicated to educating the public about organ and
tissue donation.
http://www.shareyourlife.org/
Good Life
Resources
A free mail order pharmacy service founded by a transplant recipient
for transplant recipients http://www.goodliferesources.com/
Lifelines
Transplant Recipients International Organization, Inc.
http://www.trioweb.org/lifelines/00_may_jun/page2_c.html
Liver Transplant
Support
http://forums.delphiforums.com/livertransplant/start
National
Foundation for Transplants
Patient services, fund-raising and emergency grants.
http://www.transplants.org/
The Organ
Transplant Web Ring
A transplant/donation web ring made up of great personal and commercial
web pages with resources, stories, and information http://www.geocities.com/HotSprings/8374/
Transplant
buddies
Sharing feelings and thoughts about the transplant process.
http://www.transplantbuddies.com/
TransWeb
All about transplantation and donation.
http://www.transweb.org/default.htm
Transplant
World
A virtual community to enable the citizens of Transplant World to
share their triumphs.
http://www.transplantworld.org/
UNOS - United
Network for Organ Sharing
This site is dedicated to the patients waiting and the donor families
who have shared the gift of life. http://www.unos.org/frame_Default.asp
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| MISCELLANEOUS
Helpful Links |
Financial
Help With Prescription Medications
Their function, in cooperation with the physician, is to assist
patients who may qualify to enroll in one or more of the many patient
assistance programs now available. These programs provide prescription
medicine free-of-charge to individuals in need, regardless of age,
if they meet the sponsor's criteria.
http://www.themedicineprogram.com/info.html
GAMMAGARD®
IVIG CLASS ACTION SETTLEMENT
For anyone needing Info on the class action suit from getting HCV
from a blood transfusion.
http:// www.hcv-claims.com
Heppers
in the United States:(state by state)
http://www.hepchotel.com/live/unitedsts.html
Worldwide:
http://www.hepchotel.com/live/index.html
HepC Singles
Dating - Free Membership!
http://www.hepcmatch.com/
International
Hep-C Quilts
The Hep-C quilts are made up of patches submitted by people from
all over the world with Hepatitis C. The quilts are available for
display at various public functions.
http://home.flash.net/~stern/quilt/
Online Pot
Your guide to Medical Marijuana, Medical Marijuana Cultivation,
& Medical Marijuana Activism.
http://www.geocities.com/onlinepot/
Opiate Addiction/HCV/Methadone
Info and Support
P.A.I.N. Pain Aid
Information Network
People and organizations that provide help for us, financially and
medically.
http://www.geocities.com/paininfo.geo/helps.html
Support Systems Drug
Rehabilitation
Drug rehabilitation, drug rehab center, substance abuse and alcohol
treatment centers in Northern California, offering numerous drug
and
alcohol rehabilitation programs for addiction and alcoholism.
http://www.drug-rehabilitation.com
SEVERE
Social Security Disability Benefits Law Information and Resources
http://www.concentric.net/~severe1/index.html
WIZOFWAZ
and CFS/FM
Chronic Fatigue Syndroms (CFS) and Fibromyalgia (FMS) links and
info on fun to view webpages. http://www.asan.com/users/wazzie/wizpage.htm
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| Major
Drug Company Numbers for assistance. |
Abbot Laboratories
800-688-9188
Amgen 800-272-9376
Aventis 800-221-4025
Bayer 800-998-9180
Biogen 800-456-2255
Boehringer Ingelheim Pharmaceuticals, Inc. 800-556-8317
Bristol-Myers Squibb Company 800-736-0003
Dupont Pharma 800-474-2762
Ciba Pharmaceuticals 800-257-3273
Ely Lilly and Company 800-545-6962
Glaxo Wellcome, Inc. 800-722-9294
Hoechst Marion Roussel, Inc. 800-221-4025
Immunex 800-436-2735
Jannsen Pharmaceutical 800-544-2987
Knoll Pharmaceutical Company 800-524-2474
Lederle Laboratories 703-706-5933
Merk 800-994-2111
Novartis Pharmaceuticals 800-257-3273
Organon 800-241-8812
Ortho-McNeil 800-797-7737
Parke Davis 800-223-0432
Pfizer 800-646-4455
Pharmacia and Upjohn 800-366-5570
Roche Laboratories, Inc. 800-285-4484
Roxane Labs 800-285-4484
Schering Laboratories/ Key Pharmaceuticals 800-656-9485
Scios Inc. 800-633-0711
SciClone Pharmaceuticals 800-724-2566
(SciClone Pharmaceuticals, Inc. is a biopharmaceutical company and
its
lead product ZADAXIN® is in phase 3 hepatitis C clinical trials
in the
U.S.)
Searle 800-542-2526
SmithKline Beecham Pharmaceuticals 800-546-0420
Solvay Pharmaceuticals, Inc. 800-788-9277
Wyeth-Ayerst Laboratories 800-568-9938
Zeneca Pharmaceuticals 800-424-3727
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